Worthing Lung Disease Support Group

About the group

Our meetings are held in Worthing, but we have members that live all over Sussex including Horsham, Brighton, Bognor, Littlehampton, Lewes and Shoreham.

Our group started in 2023 when a group of us met at a pulmonary rehab course. We realised that once the course finished we would still like to meet, to help each other through the difficult times.

Being diagnosed with a lung condition is hard. Our meetings are a chance to meet people who understand what you are going through. Anyone affected by interstitial lung disease (ILD), including pulmonary fibrosis, COPD, bronchiectasis or another chronic respiratory condition is welcome, including family, carers and friends.

We have arranged speakers on subjects like singing for lung health, keeping active, healthy eating, mental wellbeing, travel insurance, financial support and benefits, and the latest medical research. Specialist medical staff sometimes come along to offer advice. We also have informal social events.

We have been supported by the charities Action for Pulmonary Fibrosis, who funded our initial start-up, and we recently received a grant from Sussex Community Foundation, which lets us continue the work of the group and fund special projects.